My Photo
Blog powered by Typepad

« Forgive Me: A Meme | Main | Reposting »

Comments

Feed You can follow this conversation by subscribing to the comment feed for this post.

joditucker

Hey, when will Fluffy be in school? Please be patient with any teachers who are clueless about autism. They will come around (eventually). A second grade student who I will call Jillian I(not her real name) is autistic. She has made great strides as a second grader with a great attendant and a very patient staff who chooses to help her with all the other students, too. We are all not fully sure of all her cues yet, but we are trying. Jillian has spit on other kids in class and at recess which has caused problems. But, overall, there has been progress. Kids just know that Jillian is Jillian and deal with her as a classmate. I give you all the credit in the world for your focus to help better Fluffy for life!!

Christine

"....I know what I know by mothering with my heart. I don’t need to read a memoir to imagine what it must feel like to be him."

Boy, I wish I could make this statement. Being so blind-sided by this whole diagnosis I find it very difficult to trust my mothering instincts. Maybe that will change over time. Also, maybe since Oliver is mostly non-verbal I DO find myself searching for autism memoirs and books so that I can understand him better. I yearn to know how he experiences life, to feel more connected to him.

candace

I see nothing "wrong" with what you're doing for Fluffy. Anyone who does can bite me.

Seriously, though, you're his mom; you're doing what you know you have to do in order to make his time on this earth the best that it can be.

Will he be changed? Maybe. Is that a bad thing? No. Christopher is "changed" every time he takes his medication, but when he's in that focused state he learns how to function in a way that will make his life easier.

We all want our kids to be happy, to develop meaningful relationships with others, to find that thing they love (and if they can make a good living at it? Even better!). Good for you for helping Fluffy learn how to be the best Fluffy he can be.

Kristina Chew

Autism does seem be a disorder of the modern world and diagnosing in hindsight is a dangerous parlor game. Nonetheless, there have always been individuals whose different cognitive functioning has made real differences in our world (we wouldn't exactly be blogging without the invention of various computer technologies) and certainly individuals with cognitive and intellectual disability.

Felicity

I have nothing brilliant to add but I am here reading and as always, blinded by your light.

mom-nos

YEAH! With you all the way.

Al freaking Gore???

Wade Rankin

Hey, you missed Dan Ackroyd, who has been claimed as an Aspergers person.

Perhaps if little Albert had the same problems some of our kids had and Mrs. Einstein knew of the same interventions we use (be it RDI, ABA, biomedical, or whatever), she might have done something to ease the problems. I think it's a huge stretch to imagine that the theory of relativity would have been unthought of had Mrs. E done something.

knq

I sense from you an overall disdain with the "autism is not curable so let's make it kind of cool" feeling - by naming all these famous people with autistic tendencies... Am I right?

They used to push the idiot savant thing on parents - telling them their kids, though delayed in speech and socializing, would have an amazing talent in some area or another.

There's certainly a sense of guilt in much of the treatment I see for kids with autism spectrum disorders - like he'll never be able to do this, but he's really really great at lining up books in a row. Well great, thanks a lot for that.

I have always felt - at least in my practice - that a different way of coping, even existing, is necessary for kids with autism. Perhaps a way for us to enter their space and them bringing them out into ours - rather than forcing our world on them so harshly, when it appears obvious to me that they are unable to process it.

Regardless of your ability level, you are a person FIRST, and truly any human cannot be limited to simply behaviors and learned reactions and responses.


kim

I know nothing about autism except your daily struggles. I agree with that it is unfair and shortsighted to not try to cure everything that is wrong with your child. Nobody would say that if the child had cancer or a bum kidney. Even me, if my therapist told me that I should just try to live with post traumatic stress syndrome, making the panic attacks more liveable rather than learning how to take them away. It just doesn't make sense. I appreciate, applaud and am in awe of your constant search to cure your son's brain.

knq

YAYAYAYAY doesn't Kyra rock out. Okay - I'm so sounding like the "popular blog" groupies - but it's so nice when two of my *sniff* readers come together in blogdom.

Okay - I have to read this over again - I'm being interrupted. I'll be back.

And, I can't wait for the picture. woohoo!

mom101

Just found your blog and...wow. Just wow. Amazing post.

The comments to this entry are closed.